TED TALK: BJ Miller, MD –
What really matters at the end of life
BARBARA KARNES BOOKS, INC.
www.bkbooks.com
Barbara Karnes, award-winning end of life educator and award-winning nurse, wrote “The Hospice Blue Book,” Gone From My Sight. Observed from the bedside, written in non-medical language for families, her
booklet changed the way we experience the death of a loved one. Knowledge reduces fear.
The Conversation Project
www.theconversationproject.org
The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care.
ACP
www.acpdecisions.org
Our mission at ACP Decisions is to empower patients, along with their families, to participate in their own health care.
BEING MORTAL
www.atulgawande.com/book/being-mortal
From Atul Gawande, a book that has the potential to change medicine – and lives. Medicine has triumphed in modern times, transforming the dangers of childbirth, injury, and disease from harrowing to manageable. But when it comes to the inescapable realities of aging and death, what medicine can do often runs counter to what it should.
CHANGING THE WAY WE DIE
www.changingthewaywedie.com/hospice/book
Authors: Fran Smith and Sheila Himmel
Changing the Way We Die is a vital resource for anyone who wants to be prepared to face life’s most challenging and universal event. Authors: Fran Smith and Sheila Himmel
WHAT DYING PEOPLE WANT:
Practical Wisdom For The End Of Life
www.amazon.com/What-Dying-People-Want-Practical/dp/1586481975
Author: David Kuhl, MD
Facing death results in more fear and anxiety than any other human experience. Though much has been done to address the physical pain suffered by those with a terminal illness, Western medicine has been slow to understand and alleviate the psychological and spiritual distress that comes with the knowledge of death. In What Dying People Want, Dr. David Kuhl begins to bridge that gap by addressing end-of-life realities–practical and emotional–through his own experiences as a doctor and through the words and experiences of people who knew that they were dying.
HOW DOCTORS DIE – An essay by Ken Murray, MD
Sea Crest Home Health and Hospice
www.seacresthh.com
Founded in 2002 by local healthcare professionals seeking to make a difference for the community, Sea Crest was developed by a group of people who realized the value of home health and hospice care and wanted to offer a high quality experience for those experiencing life limiting illnesses. Today, the original vision and mission remain the cornerstones of our work.
Cancer Legal Resource/Disability Rights Legal Center
www.disabilityrightslegalcenter.org
Cancer Legal Resource Center (CLRC) is a joint program of Disability Rights Legal Center and Loyola Law School, Los Angeles. The CLRC provides information and education about cancer-related legal issues to the public through its national telephone assistance line. The CLRC also conducts national education and outreach programs for community groups, employers and healthcare professionals and is actively involved in community activities to raise public awareness of cancer-related legal and public policy issues.
Adult Protective Services
Orange County – ssa.ocgov.com/abuse/elder
Los Angeles County – css.lacounty.gov
Adult Protective Services (APS) are directed at preventing or remedying neglect, abuse or exploitation of adults who are unable to protect their own interests because of age or disability.
Caregiver Resource Center of Orange County
www.caregiveroc.org
The Caregiver Resource Center (CRC) is a trusted partner for Orange county families coping with the physical, emotional, and financial responsibilities of caregiving. By providing families with individualized, supportive services, CRC stands apart as the only Orange County agency focusing specifically on the needs of caregivers, who are coping with a loved one’s chronic illness. Services include family consultation, assessment, care planning, counseling, referrals for resources, psycho-educational seminars, respite planning and community education.
Cal Optima
www.caloptima.org
CalOptima is proud to be a public health plan – created by our community, governed by our community, and accountable to our community. We are the second largest health insurer in Orange County, providing coverage to one in eight residents and more than a quarter of our community’s children.
Council on Aging
www.coaoc.org
The Council on Aging–Orange County is a 501 (c) (3) nonprofit corporation, charged with serving older and dependent adults and their families throughout Orange County. The Council on Aging advocates for the health, well-being, and legal rights of adults needing or receiving services.
Community SeniorServ
www.communityseniorserv.com
Community SeniorServ provides home delivered meals to 1200 home bound isolated seniors per day in Orange County.
Alzheimer’s Association Orange County
www.alz.org/oc
The Alzheimer’s Association Orange County Chapter is a non-profit voluntary health organization dedicated to increasing public awareness, providing support and assistance for patients and families of Alzheimer’s disease and related disorders, and to supporting research for the cause and cure of Alzheimer’s disease.
Benefits.gov
www.benefits.gov
Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide citizens with easy, online access to government benefit and assistance programs. The site’s core function is the eligibility prescreening questionnaire or “Benefit Finder.” Answers to the questionnaire are used to evaluate a visitor’s situation and compare it with the eligibility criteria for more than 1,000 Federally-funded benefit and assistance programs. Each program description provides citizens with the next steps to apply for any benefit program of interest.
Smiles on the Run
www.smilesontherun.com
Dental Hygiene Services directly to your home or facility
Graceful Endings
www.gracefulendings.net
Navigating the Journey of Loss and Grief
The Kitchen Widow
www.thekitchenwidow.com
Grief advice and inspiration over delicious food.
What Forty Steps Taught Me About Love and Grief
https://www.youtube.com
Tembi Locke shares her passionate love affair with her husband and the heart-rending diagnosis that taught her how grief can transform.
The Pleural Mesothelioma Center
www.pleuralmesothelioma.com
The Pleural Mesothelioma Center’s mission is to help those affected by pleural mesothelioma cancer by offering free assistance and resources to those coping with this disease as well as their loved ones.
A Beginner’s Guide to the End
Simon & Schuster
Practical Advice for Living Life and Facing Death
Dying Well: The Prospect for Growth at the End of Life
www.irabyock.org/books/dying-well/
In 1997, too many Americans were dying in hospitals, often in pain, often alone. Progress has been made in alleviating pain and expanding hospice and palliative care for people nearing the end of their lives. Yet, even today, too many people are dying badly! The stories in Dying Well enable readers to imagine that wellbeing is possible through these most difficult times of life. This book remains as vital and valuable to individuals and their families today as it did when it was first published.
That Good Night
https://www.penguinrandomhouse.com/
Interweaving evocative stories of Puri’s family and the patients she cares for, That Good Night is a stunning meditation on impermanence and the role of medicine in helping us to live and die well, arming readers with information that will transform how we communicate with our doctors about what matters most to us.
The Death Deck
https://thedeathdeck.com
The Death Deck is a new party game that lets you tap into stories and ideas you’ve never heard your friends and family share before about life and death!